Barbara Jackson Memory

I was sad to learn that Dr. Jackson died on Thursday afternoon, we were her last cohort selected during her life. Such an honor to carry on her legacy through the generations to come. I learned A LOT at this conference, and  I am still learning! I am learning how tough this life is going to be with RA/Lupus/Fibro….I was amazed at how much energy a conference takes!!! Seriously so much pain and now sickness!

This choice of career is rewarding, amazing, but wow gosh….someone said they would rather do a residency (MD) that go for the PhD/EdD! While I do not know how true that is (and I doubt we can compare) I was shocked!

It is so tough living with an invisible disease, from the side effects of the drugs, to the fatigue, exhaustion, pain and frustration of limitations…it is like WOW! We have  a different life! Our new normal…is tough but I am THANKFUL that for today…I can still do what I love.

Honestly, I have more than many I know! I can still walk, and go to work! I can still go to class and work in my research. I treasure those blessings because one day I might not be able to do that, and so I def. treasure these days!

I am THANKFUL for what I do have despite my RA/Lupus and Fibro! Thankful for the Affordable Care Act that is giving me hope of insurance (cards should be here any day!). I cannot wait for 12/01! Making appointments SOON! :)

 

Here is a link to learn more about Dr. Jackson (http://www.ucea.org/home/2012/11/19/honoring-the-memory-of-barbara-l-jackson.html)

Love!

 

Through Sadness there is Joy!

It has been THAT weekend! I have been meaning to type this post since about this time yesterday….do not you love how time seems to get away from you! Through sadness there is joy! The sadness I am referring to was partially mine (my lack of insurance) but also through the loss of a loved one. I was reading on CNN a few months ago about a woman who lost her life due to no insurance and therefore she was unable to obtain the medical care she needed.  The CNN reporter mentioned a piece of the Affordable Care Act that would have potentially given her insurance if she had known it existed.

Granted my interest was piqued because I too was (am) not covered with insurance. In fact every place I apply…DENIED! The only hope I had for the longest time was a high risk insurance pool….which would cost an arm/leg/hip etc. to pay for each month. So I went to the link mentioned (https://www.pcip.gov/Who’s_Eligible.html) and applied. The waiting was interesting….trying to not get my hopes up but also not letting myself hope either. It was that inner battle…can you be disappointed if you were not expecting anything?

Well the wait is over! As of last night when I checked my mail box…I was ACCEPTED! Praise God! As of 12/01/2012 I will be able to see my doctors! Blessed! Very blessed! I’m sharing this link with hopes that it can help someone else! :)