I have to share this awesome site. You hear so many of us talk about our “spoons” and many wonder what that means. I think this author (http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/) did an excellent job trying to share visually how our lives is and what we feel on a daily basis. While we don’t have “real” spoons, we do all feel that there is only so much our precious energy levels can handle. I know I for one don’t wake up with energy, I wake up with pain. I wake up almost 2 hours before I need to walk out the door because it takes so long to get moving, get dressed, do my hair and make up. It can take several hours before I feel awake and ready…but remember most of that time…I’m at work putting on a smile, answering the phone, etc.
Too often we have to put a smile on our face, and a put on an academy award winning performance. You really don’t know what fatigue is until you experience it…it is beyond regular tired, it is beyond flu-aching and tired, and it feels as if you have run miles with out stopping. It makes it working, living, having a family, etc. so hard! But you know there are hundreds of us who fight this very battle every day.
And for those of us who struggle with this disease, your reading the “Spoon Theory” helps us know that you want to try and understand a bit about what we face every day. For people looking outside in….it might seem as if we are lazy, unpredictable, undependable, and many more words. I know I feel that way….I hate making appointments because 9/10 times I might not be able to make that appointment. I struggle to make evening events on days that I have been working, making it difficult to go on dinner dates (even with my own husband) or bible studies at church. Even making it to Life group or service on Sunday is tough because I really don’t know until the morning of whether or not I will actually be able to make it. Some days (most days) I push and push to have that “normal” life, one day maybe that normal life will happen (it is great to dream right!)
Off to plan my schedule (maybe for once it will turn out that way!)…SPOONS!