I love the Christmas Break #toabetteryear2017

It’s been a great two weeks since “break” officially started from work. Not only getting to see my new favorite city (Chicago) and getting the opportunity to experience Seattle/Vancouver, but I also enjoyed just getting some time to rest and plan. I’ve got a list of better habits I want to work on this year and so far I’ve been doing decent at sticking to those habits.

Next week it is back to the usual  – job and life. I’m excited though, we have many great things planned for this semester. I always enjoy starting a new semester especially the Spring. I guess maybe because that means summer is next :).

I hope this year doesn’t fly by like the last one did! It seemed like one second it was January, then July, then November and then New Year.

One thing is for sure, I hope to spend more time focusing on what I need, in addition to what others need from me. I’ve learned you cannot always be filling up others…you have to fill up yourself too!

#toabetter2017 #mymklife #passion #resilience #healing #betterhabits #iwillbepositive #thereisalwayshope #ra #lupus #fibro #sjogrens #fibroid

Happy 2017 #whatareyouthankfulfor

We have so loved being in a new city for the New Year! Celebrating the end of a year and beginning of the next year is probably one of my favorite parts of the year. It was fun to watch the various countries celebrate and then watch the celebrations in NYC and wait 3 hours to celebrate in Seattle #westcoastrocks. Canada was so fun! Stanley Park was probably my favorite spot! I’ve got a ton of pictures on my Facebook page! 

While 2016 was winding down I spent some time planning my goals for 2017! I have invested in an Erin Condren Life Planner! I’m so exited to get started, I’ve loved connecting with so many people in the various Facebook groups I have found, I hope to develop some great goals this year that will help us have a better future. 

I was scrolling through some posts yesterday and I saw one that caught my eye, it was writing down ten (10) things you were grateful for in 2016.  My hubby and I spent some time today doing that and talking about, while 2016 was a tough year, there are things to be grateful for….might take some time but! I highly encourage it! 

My 10 things I am grateful for in 2016

  1. Adding Michael (our adorable 10 month old, almost 100 pound Great Prynees). We brought him home shortly before we lost Bruce (our 4yr old Siberian passed from Crohn’s disease). We haven’t had a puppy in ages, so it was definitely a learning experience but we wouldn’t trade his fuzzy self for anything. 
  2. Seven (7) years of marriage! As you can imagine being married is tough when you have major chronic health issues. This year alone we faced multiple battles with bronchial pneumonia, RA progressing to new joints, Sepsis, ICU stay, a whole new world of fibroids, and surgery (D&C and a Myomectomy). Life with Rheumatoid Arthritis, Lupus, Sjogrens, Chronic Fatigue Syndrome, Fibromyalgia, Severe Asthma, and many more issues will always but challenging but I do hope that 2017 will be better! And #nomoresurgery
  3. Mary Kay – I love my business, it is the perfect size and perfect hobby for me. I am constantly amazed at my customers, they are the reason behind the business. I am so grateful for the opportunity it to do something I never thought I would do and I enjoy learning about skincare/color cosmetics. I also treasure the relationships I get to build, the one thing missing when I go to a department store! I’ve continued to see the blessing and value of a family/small business/home based business.
  4. I love what I get to do at my job #suchadifferentplacethan2015! God truly has grown me and I love what I do! 
  5. Better money management than 2015! #willdobetterin2017 #2020 #goals 
  6. Tina’s friendship, I can’t wait to see what 2017 and the rest of our lives brings #travelingtheworld #goals #sherlockrocks
  7. I got to stand in Vatican City #lifelongdreamaccomplished #goingbackin3months #cantwaittoseeitagain
  8. New gadgets, mostly the treadmill #inamedmytreadmillToby
  9. Simponi – the struggle continues to find a biologic medicine that will manage my RA and Lupus. While I do believe it is working, we also have seen the downside of a monthly medication. Hopefully 2017 will continue positive results with treatment.
  10. We got to travel as a family this year! I love traveling with friends or for work but I really enjoy taking my hubby places. One of my biggest goals is to travel the globe, and I hope some of that will be with my hubby! 

Stay tuned to the blog this year, I know I can’t wait to see what 2017 brings! 

XO

#happynewyear #nyeSeattle #newyearsday

Healing 

It’s been almost three weeks since surgery (Friday will be three weeks!). The second week of recovery and this week has been spent traveling! I know, not what you would think someone would be doing but thankfully I’ve done pretty decently with the travel. Wednesday of last week I flew to see my amazing friend, she lives just outside of Chicago proper and I loved it. Snow was on the ground, it was nice and cold, and she has the most adorable Basset Hound (named Sherlock)! We spent the days relaxing, talking, sleeping, and exploring. I also got to visit a winery/restaurant I’ve wanted to visit for a year. Coopers Hawk……open a branch in Texas please! 

I got home on Christmas Eve night and spent Christmas Day on my couch, catching up on the West Wing. We headed the next day and landed in rainy (yet awesome) Seattle! We spent our first day exploring the blocks close to our hotel, I’m amazed there is little parking but it hasn’t been too bad because our hotel is right on Pike Street. 

We are enjoying getting away and seeing new places. We talked about coming here last year, and I’m so glad it worked out. Thursday it is supposed to pour rain so I hope to spend my day working on planning 2017 goals. One thing I missed this year, I didn’t have a drive/a focus for anything in particular. I was just keeping my head above water and I don’t like that feeling. I miss (desperately miss) the goals of homework and class schedules. But I realize I can find organization in other things – finances, goal planning, working out, and my business. So that is one thing I hope to work on this coming year. Focusing more on consistency and goals, things can be achieved and when you are constantly working toward something I’m the first to say – you feel grounded. 

Off to get some rest, pictures of our day are posted on my Faceboook page (see link to the side). Seattle is cerainly an amazing place! 

One month today!

One month today, 11/15, my world changed in a way I never anticipated. I’m so glad that today I am definitely not where I was last month. Last month I was bleeding so bad I couldn’t change fast enough, I was crying because the cramps were so bad, and at this time, I was actually sitting in an ER getting ultrasounds done and fluids.

Two days later, I was back to the ER and this time getting admitted for Sepsis. And then it just goes from there. I’m grateful this month, I am almost one full week post surgery. I’m healing slowly every day. Today I can breath better, I think the massive steroids are working on my lungs. I can breath and it not feel like I’m being stabbed, just a little raw.

I’m moving slow and super sore, but I’m trying to move a bit each day. My goal Saturday (one week post surgery) is to get on my treadmill and just walk for 5-10 minutes (work my way up). I need to keep my legs moving!

I spent today working on finding a new pulmonologist. The CAT scan came back with a small (5mm) nodule in my right lung. While we know that RA can do that, we want to make sure to be aggressive with ensuring that is all that it is. I hope to see my PCP after the holidays to get a referral, that also gives me time to find a pulmonologist that I can hopefully see. It is always something right!

At least we are making progress in the healing department! One step (one day) at a time!

#healing #day6postsurgery #holidays2016

Healing One Step at a Time

I spent today on emails and working on budget. While I miss getting ready and getting to the office, I do enjoy I can work from home and keep up with emails and things at the office. We are winding down for the semester, which is another great thing. We have said time and time again, if this whole mess had to happen…it happened at the best time possible. The “slowest” time of the whole semester is the week before Thanksgiving through the end of the semester….and when did the bleeding just randomly start…the week before Thanksgiving! God always knows!

Pain today has been pretty steady, I try to not depend on the pain medicine. One thing I hate is being pain medicine dependent, it is far to easy when you live in constant pain. I’m hoping by tomorrow or the next day I will see a change in my breathing, I will have been on steroids for 5 days at that point….and I anticipate that helping my breathing improve.

I have my first surgical follow up appointment on Tuesday. I’m feeling more and more confident I will be flying next Wednesday….moving slow (most definitely) and not up to my normal (that will take weeks) but at least moving! And hopefully seeing SNOW! : )

Hubby went back to work today, he feels so much better! I hated that he was sick when I was sick. He rarely get sicks so it always sucks! BUT he is much improved today, I would say pretty close to his normal.

Off to watch the Survivor finale! One day I will have a Survivor cake 😀

Such a gorgeous tree
Leia loves to snuggle
Precious taking advantage of my wheelchair
Pepper loves the couch
Michael is an adorable baby
I love Leia’s ears

Day 4!

Great news, the hubby is feeling much better! The antibiotics and hot drinks are helping, he feels 85-90% better! Yay!!

I’m amazed how some people think the body works! I’ve had some (not many but some) people start asking me today if I’m back to my normal! I just shake my head, it’s hard enough to live every day fighting through RA and Lupus. But add a surgery where your uterus has been cut, and add every breath feeling like someone is stabbing you. Hmmmm I don’t think even a “normal” person would be back to his or her normal!

Pleurisy isn’t a coughing issue, it is every breath causes severe pain. There is unfortunately nothing that can be done to help or fix it but I am on oral steriods. The oral steriods will help the lung lining heal (become less inflammed) and that will reduce the pain with every breath. I so wish couch meds or tea would help it!

I was able to spent the day watching Gilmore Girls, Gossip Girls, Sex and the City, random Lifetime shows all while working away on emails. It is nice that your job is so dependent on emails, and it gives me the human interaction I need (even if it is only emails)!

I did some laundry (that took a while) and I did a load of dishes (who knew it took so much energy to load the dishwasher! I felt super proud of myself! And I took a shower, washing my hair! Now the trick will be straightening it! HAH!

The day surgery and emergency department both called to check on me today. I appreciate the thoughtfulness to call. While there isn’t really anything they can do, it helps to know they at least care to check on you!

The kids have enjoyed just relaxing today, Michael is growing bigger and bigger every day!

The couch is hers
Michael has claimed the love seat
I love NY pants are awesome, and Leia is buried in the blue blanket!
Michael believes the love seat is his exclusive bed
Leia is all worn out!